I mean, you know when I've come, like I say, when I read the Endo… thing, it made such a difference to hear somebody else and though I don't want to sit here and be negative and negative and negative because it is awful, you know, I could, that's too simplistic a language for how awful it is you know to feel as bad as I've personally, you know, in my personal experience feel.
But... and you don't want to, I don't want to be negative about it because people need to be positive at the same time because otherwise it's, there's no point. How do you get through tomorrow if you are going to be negative. Even though everything in your life feels negative, not everything but, you know everything feels negative because it's so hard. You need, their needs without being people who are ill, you know I hate flowery nurses who give me positive rubbish in my fa.., you know, who absolutely know absolutely nothing about how you are feeling and they just try and cheer you up and you, you know, feel absolutely awful and nothing they say is going to make you feel better.
But having information available that of all sorts hits of everything of positive and negative I think reaches a person at the, you know, at the right time, can make a huge difference to them. If they are looking on the internet, you know and they feel particularly positive about something and they read it, and somebody else felt positive about that thing it could be profound.
And the same thing about feeling negative about something to be reassured because somebody else felt negative is as equally profound because it is reassuring that you are not going completely bizarre or potty. I think all of it is really important. Really, really important.
You know and I'm rubbish at using support groups and support mechanisms but I think it works for people, everybody's different and having all these things available means that it meets somebody's needs if those needs are being met it's so important. |
