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Chronic PainArrow
Age 41-60
Interview CP12  

Interview CP12

Age at Interview: 47
Sex: Female
Age at Diagnosis: 46
Background: Secretary; married.
Brief outline:Multiple tests all negative. Diagnosed with Fibromyalgia, 2002. Pain management: Pain Association Scotland Living with Pain course. Current Medication: Occasionally uses co-codamol.


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Her consultant gave her an internet address and through that she found the Fibromyalgia Association.

 



You said that, when you finally got your diagnosis, was that from the consultant at the hospital?

Yeah.

And, and did he give you some information then?

Very little. Gave me a bit of information about it and told me where, well he asked me if I was on the Internet and he gave me an Internet site where I could find some which was quite useful and from that, that was where I found the Fibromyalgia Association and I wrote to them and became a member and started getting the monthly magazine. 

So... but I wouldn't say he bombarded me with information. The main thing sticks in my head was there is no cure. That's what he told me. There's nothing much the NHS can do for it and there is no cure. So in itself I'd got a diagnosis but it wasn't really all that helpful. So... but I've found most of the information really I have found out myself through talking to other people and through that magazine and various things like that. 

It's through the magazine actually, they asked at the end of last year the people would write in with their own particular story and they publish one every month and so I, it was one of the days I was feeling sort of sorry for myself so I wrote a couple of pages and I attached a digital photograph, sent it off and they published it in the magazine in April and through that I've had well I got tons of emails. 

I got 30 or something from different people all over the country but since then I actually keep in touch with 4 different women from Bristol and various places like that and we've kind of kept up the email chat. You know it's got to sort of general chit chat now as well as the Fibromyalgia symptoms as well but it's quite good that you know that somebody else knows what you're talking about. Because there isn't actually, there are various support groups round the country, but I think my nearest one here is actually Dundee which isn't much good for me really.
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