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Chronic PainArrow
Age 20-30
Interview CP02  

Interview CP02

Age at Interview: 29
Sex: Female
Age at Diagnosis: 23
Background: Not working/voluntary work for Fibromyalgia Association; single.
Brief outline:Multiple tests all negative. Diagnosed with Fibromyalgia, 1996. Pain management: In-patient NHS pain management programme. Current medication: tramadol, amitriptyline, sertraline. Past medication: ibuprofen, paracetamol, diazepam


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Recommends using the Citizen's Advice Bureau for information about benefits and has also searched medical literature on the internet via Medline.

 



There's a lot of issues that come up that you have to deal with, like the fact that I can't be in paid employment and having to ask all the questions about benefits, having to look at what you can and can't do, that's very important to research that to know where you stand and yes you need it explained, you need to go to people, like the you need to go to the Citizens Advise Bureau, to find out what you need to know, to go to people who specialise in each of these different fields, so you've got all the knowledge you need to move your life forward.  

What other questions were important? I mean questions for me were like what research is going on, is anyone actually doing something about this and it was very important to me to get onto Medline and do my own research studies, get the research papers myself, read them myself, digest it and to try and see what patterns there were, because you've got pockets of research in America and Norway, in Europe and in the UK but are they actually linked together. 

I suppose I see one of my things that I enjoy doing is writing articles that link all the different research together to try and look for patterns and try and move the research forward, that's the area that I'm most interested in, is seeing the research move, being able to work with medical professionals and being as treated as one myself having a degree and the knowledge to do it, to actually work as a communication link.
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