Janet – Interview 01  

Janet – Interview 01

Age at Interview: 65
Sex: Female
Background: Janet is married and is a retired waitress. She has several grandchildren. Ethnic background/nationality: white British.

Brief outline:Janet has several grandchildren. She talks about her 8 year old grandson, L and her 6 year old granddaughter G both of whom have autism.

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Janet feels frustrated at the lack of awareness of autism among some health professionals; particularly in A&E departments.

 



From that perspective from health professionals I think... just as an instance, my grandson put, he’d got the bath sponge in the bath and he’d pulled a little piece off and put it up his nose, and this caused a problem and we had to take him to A & E. And it was just horrendous the performance we had with the doctor that was on duty in A & E because, “What is this autism?” He was a foreign gentleman. “What is this autism? I don’t understand? “And you just wring your hands, you know, just feel so frustrated because, so there’s not the understanding. I don’t think there’s enough knowledge among health professionals. I mean if it’s their field like the paediatrician, the consultant paediatrician that diagnosed them, yes.
 
But my grandson had a fall recently, and broke his leg, through an accident at one of the play centres in our local town. And... my daughter took him to, no my son-in-law took him, because my daughter had a yoga class, and my son-in-law took him to A & E because it was too late for her to cancel this, the class that she was running. And they immediately alerted Social Services, because they said it didn’t look like a regular accident, and my son-in-law couldn’t explain the situation enough. 
 
So that was a bad situation to be in, because, but my son-in-law did say that we could, he could produce an accident report from this place where the accident had happened, and because he had a fracture and had to have a pot from thigh to toes... it was sort of distressing for [grandson’s name], but it was distressing for my son-in-law as well. Because as he said, he said before he left, before my son-in-law left with my grandson that he would have to inform Social Services, and they would be investigating and he was just [small laugh] you know, well if you have to do that, you have to do that, he said to the guy. But he said, “You know, I can assure you that it was an accident.” You know, he said. “Well this is normal procedure, we have to do this, so...” 
 

Having a grandchild on the autism spectrum
Grandparents of people with autism
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