Chiari Malformation 09/10/09

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I have Chiari Malformation, a serious neurological condition in which the lower part of the brain (the Cerebellar tonsils) descends into the Spinal canal blocking the flow of CSF and putting pressure on the brain and spinal cord. This is my story: http://ichiarian.blogspot.com/2009/07/my-chiari-story.html I am working to raise awareness of the condition as many sufferers may go years without an accurate diagnosis. I would be interested to hear other sufferers experiences of this condition.
 
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Re:Chiari Malformation

09/10/09

Hi Laura, Here is the link to my story, I hope it helps. http://chiariblog.co.uk/node/38 Keep up the brilliant work, You are doing fantastic! Laura x
 
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Re:Chiari Malformation

09/10/09

Hey Laura Great work here, looking forward to seeing some changes to the NHS websites. I am so glad we had that chat a while ago, I have been collecting various Chiari stories as you know about other peoples experiences with Chiari. most of them are on my blog, and am updating it as we progress. The following is a link to mine, and the second link is to the story pages. http://chiariblog.co.uk/content/my-own-brief-story http://chiariblog.co.uk/taxonomy/term/3 Keep on getting the results. Chris
 
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Re:Chiari Malformation

09/10/09

Hey Laura, as promised here is the link to my full Chiari story: http://meandchiari-malformation.blogspot.com xxxx
 
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