01/01/01

Welcome to the Healthtalkonline Forum.

 

Elsewhere on this site Healthtalkonline publishes hundreds of video and audio clips from interviews with people talking about their  experiences; using material that is carefully put together by researchers with clinical and user input.

The Forum is the place on the site where you can have your say,  discuss your experiences of health and illness, ask questions and share advice.
Please view our forum rules before posting and note that  Healthtalkonline does not endorse forum postings nor moderate content other than the removal of offensive postings.

 

 

 
spacer
Re:

06/08/09

Rosanna In early 2009 I was in a serious car crash in the snow. I had to be cut out of the car (along with my daughter) and rushed to hospital. A metal nail was inserted inside my femur from hip to kneecap in an eight hour operation. I struggled with the NHS and finally resorted to the CEO of my local NHS Trust to get things resolved. Delays and administrative failures were unimaginable. While this was going on I was diagnosed with prostate cancer. There I hit buffers - after being told it had probably spread to the rest of my body (8 out of 10 on the Gleason Scale “aggressive”. I then couldn't get another appointment for well over six weeks – not pleasant if there is a possibility of a death sentence. I changed to a different health authority. The initial treatment recommended was surgery, the next consultant (one of the country’s top oncologists) said that was very unwise and recommended a totally different approach. As a consequence I have recently started drug therapy (anti androgens), then radiotherapy (six weeks every day) followed by Brachytherapy. I sometimes think I have cheated death twice this year, especially as my GP initially refused to test me for Prostate Cancer as I had no obvious symptoms. I felt that, in my late 50s, I should. I was right! The bit that follows is on the site already but here it all is in one go. Hope I can contribute to your project ================================================================== During a routine consultation with my GP, I suggested that at my age (57) I should have had a prostate cancer test even though I had no symptoms. He was reluctant to do the PSA (Prostate Specific Antigen) test -a blood test - due to the high incidence of “false positives”. I insisted however and the PSA test was carried out – it proved to be positive, 7. At a later date he carried out DRE, digital rectal examination, and then referred me to an urologist who did another DRE and also a urine flow test. This led to a biopsy which gave 8 on the Gleason scale – classified as “aggressive”. The fear was that the cancer had spread to the rest of the body so I had an MRI scan and a bone scan. Prostatectomy was proposed. At this stage, having read extensively on the subject and being aware of the potential dangers of an operation (spreading the cancer cells), I changed consultant, selecting an oncologist. He was disturbed to learn that prostatectomy had been proposed. He advised that the cancer had not spread beyond the prostate and that “I would die of something else.” The first part of my treatment started, in mid June 2009. I began a two year course of hormone treatment drugs – Casodex (Bicalutamide), an anti-androgen - to make the treatment of the cancer more effective by reducing the testosterone level to stop the growth and spread of cancer cells. There are some side effects which make me lethargic at times but generally I feel fit. In early September I start radiotherapy sessions at Mount Vernon Hospital in Northwood. These sessions will probably be daily Monday to Friday for about four or five weeks. After that treatment ends there will be brachytherapy which in my case will involve inserting temporary implants -plastic capsules containing radioactive iodine - into the prostate under general anaesthetic; the capsules are removed after two or three days. This should clear out any remaining problem cancer cells. The drug treatment continues until June 2011 at which point I am planning a celebration party!
 
spacer
Re:

06/08/09

Rosanna, I have spent the last three years dealing with Accute Myloid Leukaemia and the treatment and after effects of a bone marrow transplant, not my illness but my husband of forty years, who was a fit healthy man of 58 who thought he was indestructable up until 24th August 2006. Anthing I can help you with from a relative's perspective pleas contact me.
 
spacer
Re:

Steve 04/08/09

Hi Rosanna, I am 46 and was Born with without a Oesophagus what so ever and have spent most of my life in and out of Hospital and I am in Recovery from Drink and drugs and as you can well imagine Gone through the mill, if i can help Please Respond at serenity07@inbox.com, sorry this is short but I dont realy know what to say unless someone asks me, Steve
 
spacer
Re:

04/08/09

Hiya Rosanna, I would love to help you with your project....!!! My name is Stephen and am 59 years young. I have been throught the mill ( So to speak.)..LOL. If you are as interested as me in this email me...stephen@savers2010.com Ciao fn XX stephen.
 
In the news
   Support our work

Mail to a friend

Send