Pseudomyxoma Peritonei (PMP) 19/11/08

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I am writing in order to raise awareness of a rare form of abdominal cancer known as Pseudomyxoma Peritonei (PMP). Most members of the public have never heard of it, and many doctors know very little about it, which is why it is often not diagnosed or diagnosed too late for proper treatment. There are only two hospitals in the UK that specialise in PMP treatment: North Hampshire Hospital, Basingstoke, and the Christie Hospital, Manchester. I have written up my story as a PMP patient here: http://www.camsoftpartners.co.uk/pmpsurvivor.htm My Web page contains links to other sources of information on PMP.

 
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Re:Pseudomyxoma Peritonei (PMP)

19/11/08

I agree. The Christie forum is a great source of information. I am an outpatient at the North Hampshire Hospital - which does not maintain a forum or blog, but the staff there are excellent and know a lot about PMP. BTW, the reply window in this forum has an impossibly small font. I cna hardly read what I type. 12-point Arial is the recommended minimum on the Web. Graham
 
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Re:Pseudomyxoma Peritonei (PMP)

19/11/08

As someone who has been sucesfully (so far) been treated at The Christie Hospital for PMP, I have been amazed by how few medical professionals are aware of the condition. in fact many of the doctors at The Christie were keen to discuss my condition with me when I was in for surgery. For anyone who has been touched by this rare and scary disease, there is a forum on the Christie website at www.christie.nhs.uk/pmp/forum, where many people who have been disgnosed with or treated for this condition discuss issues and support each other and help newly diagnosed patients.
 
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